Jennifer - My two month old son was just diagnosed with Galactosemia. Galactosemia is a metabolic disorder where he lacks the enezyme to break down galactose. He will have to live the rest of his life dairy free. This is not a form of lactose-intolerance. Where lactose intolerance is an allergy, galactosemia is a genetic disorder.

People with this disorder cannot break done the sugar in milk--any animal milk. The sugar then builds up in the persons system and becomes toxic. It can cause liver and kidney damage, brain damage, developmental damages, and even death.

I am grateful to have found a dairy-free food site where I can find things like dairy-free mac and cheese and crackers. My husband and I are changing aour diet to accomadate our sons diet. Finding your site will make that easier. Thank you.

Update from Jennifer (January 2011 - the original story above is from July 2007):

Almost 4 years ago I found your site when my 2 month old son was diagnosed with Galactosemia. (My personal story is still on the website [above]) :) My son is almost 4 now and doing wonderful. After further testing, it was discovered that he had the variante case, Duarte Galactosemia, meaning that he could not have milk/milk products for the first year of his life, but then could slowly be introduced to milk/milk products.

I am writing you again because we are about to have baby number two. I am not stressed about how I will deal should this child have any version of Galactosemia because I have this website to turn to. I know that I will be able to find everything I need to make any adjustments I may need to make. I just wanted to say thank you for still being here.