By Gina Clowes – One of the challenges faced by parents raising food-allergic children is that the condition is hidden. One cannot look at an allergic child and see that they might be fatally harmed by a healthy food such as milk, egg or peanut. Food is everywhere, and it can feel like a minefield to parents trying to protect their young children. Allergy moms are accustomed to folks dismissing them as anxious or overprotective.
Yet there is one mom who doesn’t get those rolled eyes, at least not anymore. Sara Shannon is the mother of Sabrina Shannon, the beautiful and vivacious 8th grader from Ontario, Canada who died three years ago from food induced anaphylaxis. It is believed that she was exposed to a trace amount of dairy on tongs that were used to serve French fries in her school cafeteria.
It was September 29, 2003 and Sabrina told her mother she didn’t want another sandwich for lunch. Always careful about her allergies, she had checked with the cafeteria and found they served safe French fries which she had eaten once the week before. They were delicious and she wanted to have them again.
Sara hesitated, but she knew Sabrina was responsible about her allergies. She gave her daughter money for the fries. Sara can still clearly see that five dollar bill in her daughter’s hand.
Sabrina ordered the French fries at lunch after double checking that the oil they were fried in was safe. After eating, Sabrina and a friend, headed to geography class where Sabrina felt ill and started to wheeze. Accompanied by another student, Sabrina walked to the school office on the other side of the building, stumbling along the way.
Sabrina’s last conscious moments were as she arrived at the school office and complained of difficulty breathing. It finally dawned on a teacher there that Sabrina may be experiencing anaphylaxis and someone ran to her locker to retrieve her EpiPen. But Sabrina collapsed and lost consciousness before it could be administered. School officials called for an ambulance and to notify Sara.
It was a beautiful, sunny day and Sara says she can still see the kids playing soccer outside the school as she arrived at the school. Then she saw Sabrina as she was carried out on a stretcher, her long red hair spilling over the sides. She noticed Sabrina’s hand, the same hand that held the lunch money, only this time it hung down loosely in a way that terrified her.
As Sabrina was transported by ambulance to Pembroke General Hospital, she had no pulse. Her heart had stopped but was restarted. She was airlifted to a Children’s hospital in Ontario, but it was too late. She was without oxygen for too long. There was talk of extensive brain damage; vital organs were shutting down. Sabrina’s family surrounded her and Sara made a promise to her daughter. She promised Sabrina that she would do everything possible to prevent this from happening to another family. It was September 30, 2003.
It’s been three years since and not a day – not an hour – goes by that Sara doesn’t think of Sabrina. One way that Sara has found to deal with the unimaginable grief is to keep the promise that she made. With the support of many others and with a story that clearly illustrates the need for food allergy awareness and training, Sara has worked hard to get a law to protect food allergic students in school – a law that has come to be known as “Sabrina’s Law.”
A year after Sabrina’s death, the chief coroner of Eastern Ontario, Dr. Andrew McCallum called for schools to implement policies to protect food allergic students. Dave Levac, a Member of Provincial Parliament (similar to a State Senator) in Ontario sponsored Bill 3, an Act to protect anaphylactic students. Private members bills like this one rarely pass but there were a multitude of angles working behind the scenes to make it happen. On May 16, 2005 Bill 3 passed, and was renamed Sabrina’s Law.
Sabrina’s law is the first law of its kind in Canada. It requires schools to develop anaphylaxis management plans including risk reduction, storage and training of epinephrine auto-injectors, emergency procedures and training for staff. Sabrina’s law is not a ban of any kind, and does not address any specific allergens. Studies are underway in Ontario to measure the effectiveness of Sabrina’s Law and the difference between Ontario and other provinces without such a law.
Sabrina’s death was likely preventable. Had Sabrina’s law been in place three years ago, Sara believes her only daughter would still be here. Sabrina’s aunt, Kathleen Whelen, writes:
“Like many kids with serious allergies, Sabrina was educated and she was careful. But she couldn’t live in a bubble. She had a right to engage with the world, and live a vibrant life. She did her part to protect herself, but it wasn’t enough. The rest is up to us."
Update on Food Allergy Legislation and Education
On October 13, 2006, food allergy researchers, physicians, support group leaders and advocates from the United States and Canada met at Niagara Falls, Ontario to celebrate the implementation of Sabrina’s Law in Ontario Public schools. One purpose of the meeting was to encourage dialogue amongst individuals and associations in Canada and the US with a vested interest in public policies, such as Sabrina’s Law, which safeguard children at risk for anaphylaxis.
Parts of the conference and ceremony at Niagara Falls were filmed as part of a documentary on Sabrina’s Law. Lank/Beach Productions is producing this documentary to enlighten audiences about the seriousness of anaphylaxis and how this ever increasing condition is having an impact on people worldwide. Through archival home footage the film will introduce viewers to Sabrina and follow Sara’s efforts to keep the promise to her alive: The promise that this tragedy would never happen to another family.
Parents and advocates in other provinces are also looking to implement Sabrina’s Law and Sara Shannon has now offered to lend her voice to help advocates in the US as well. Sara is planning to visit Seattle, Washington and Cranberry Township, Pennsylvania to visit with local Senators and support groups to speak about the importance of school policy to protect food allergic students.
©2007 Reprinted with permission of Gina Clowes, founder of AllergyMoms.
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